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Kids With Special Needs and Disabilities
Reply to "Low muscle tone"
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[quote=Anonymous][quote=Anonymous]My child (8) has low muscle tone. He was late to sit, crawl, walk. He had Physical Therapy from age 10 months until 5 years when he met all the goals on his IEP. He has had occupational therapy 10 months - current. He was a late talker. Difficulty swallowing, constipated. He no longer has PT at school, but I require he get the type of exercise which makes him stronger. 1) martial arts weekly 2) swim lessons weekly. It took a long while to learn to ride a bike, but in good whether, we go out biking on a regular basis. He will never be good at team sports, at least our developmental pediatrician says to stay with individual sports. He is getting his purple belt soon -- he takes all classes with typical kids and it takes longer to get to different levels. The best thing is he truly likes physical activity. He can't keep up (running) with his peers, except overweight peers. He can keep up with kids 2 years younger than him. His endurance is low, but we make him do things (within reason) that we think he should be able to do. He hikes, likes to play outdoor games, cross-country skis (only likes this a little). His balance and coordination have improved greatly, but not as good as typical kids. [/quote] THis is my DD - she is now 13 years. SHe did not roll over til after she was a year old. Walked at 16 months. Did PT for several years. SHe was constipated and has such an easy-going personality that she really didn't care to move. ;) She was so content just to sit and watch or play quietly with her Barbies. We are an active family so we walk/hike in the nicer weather. We have a gym membership which has a pool. SHe took lessons for a few years and she swims (plays in the pool) for fun. I recently got her interested in running on the tread mill with me. SHe plays rec league soccer since 1st grade. She is a bench warmer but loves being part of the team.We'd love to start skiing as a family but she dislocated her knee cap 1.5 years ago playing soccer when she simply stepped wrong. She is uncoordinated and slow with anything requiring movement. After a neurophych eval, she was dx with executive functioning disorder. SHe is the kindest, most thoughtful person I know but it breaks my heart how her peers just catch on to stuff so much faster. Low muscle tone and EF disorder compound her slow pace of life. I hope she'll find her people and pace of living as an adult. DMV or other large areas will just steamroll her.[/quote]
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