Reply to Parents how do you make your career work when talking care of a child with a disability?

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[quote=Anonymous]I'm a fed and have a daughter with severe disabilities and multiple medical issues. My career hasn't suffered (yet) but my managers have been great and very supportive of flexible schedules and medical leave. For a while I worked 10 hour days to take one day a week off for doctors' appointments, which was exhausting,   but a regular alternative work schedule with one day off every other week became enough.  We don't have family in the area but grandparents have flown to town when we've had extended hospitalizations, so we're lucky to have that support. We also found a great nanny with experience working with SN kids.

Like others, I benefited from a decade of working in my office and the credibility built up over that time. Government benefits on issues like this are great, though,  and have made such a difference. I suspect I would not be able to have a fulfilling career in the private sector raising a child like mine. Most of the moms in my support groups eventually quit or lost their jobs because of caregiving responsibilities. [/quote]

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