Reply to Russel Silver Syndrome

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[quote=Anonymous]Hi Op,

I've been in your shoes. Our DD was born at 39.5 weeks at 4 lbs 12 oz. She gained weight as an infant, but verrry slowly. She did well on breastmilk, however so we did not have feeding difficulties, but she was a very late talker and continues speech therapy at 3 for oral-motor planning. She also looked funny as a baby--giant eyes, tiny face, ears sticking out and a bit low. I googled a lot of syndromes, but held off on genetic counseling (we had actually seen Rosenbaum during pregnancy because we had a weird result on our amnio, but seems unrelated, though who knows, we were going to go back, at some point and then.... we gave it time, she got bigger, and she just had her 3rd year checkup and she's gone from not on the growth chart to 4th (1 year) to 10th (2 year) to 20th at 3 years.

She's also happy, healthy, talkative, mischevious and intelligent and while she still has huge eyes and small features, she no longer looks as funny.

I think its great you are seeing Rosenbaum, he is very thorough, but I just wanted to empathize with you, as I recall being very worried the first couple months as well. [/quote]

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