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[quote=Anonymous][quote=Anonymous][quote=Anonymous]New poster her.  OP, my DD1 sounds a lot like yours does.  She didn't eat a lot and had reflux/sucking issues.  We started the analysis with an endocrinologist when she was six months old.  We also went to GI doctors, and when she was around 18 months we went to Dr. Rosenbaum at Children's and we really liked him.  He ruled out RSS and basically thought our child was just not big - I'm only 5'0" so it's not shocking that she's tiny.  I recommend seeing him because he had a great bedside manner and was very thorough.

I also just wanted to let you know that you aren't alone and I'm thinking of you.  That first year was really tough.[/quote]

Thanks, PP.  I'm 5'8 and DH is 6'2.  DH was a very skinny child, but rather average sized as a baby.  I was a large baby and medium sized child.

Dr. Rosenbaum is the geneticist we're seeing.  I'm glad you had a good experience with him.  If you can recall, what were the tests he did to rule out RSS?  From my limited research, it looks like it's really just a physical exam of the baby and perhaps a blood test for the mother.

Also, who did you use as your endocrinologist.  I tried to get an appointment at Johns Hopkins in their endocrine department but they told me I would need some type of diagnosis before they'd see me.

Thank you again for the kind words.   [/quote]

Quoted PP here.  Dr. Rosenbaum performed a physical exam and there is a blood test for DD that was going to be around $2k out of pocket that we did not do because Dr. Rosenbaum was very confidant that DD did not have RSS.  As a total aside, the exam was interesting because he also looked at my husband and me and pointed out some of my features that my DD had.  This was cool because DD looks SO incredibly like my husband that it was interesting to see what features of mine she has that weren't obvious to me.  I think Children's said that they could work with my insurance to cover the test, but Dr. Rosenbaum did not think it was necessary.

As far as endocrinologists, we saw Dr. Sharafat at Georgetown.  I loved her.  I believe by the time we were referred to her, DD had been diagnosed as failure to thrive and that might have been the hook to see her?  She took some blood samples to check for growth hormone levels.  DD's levels were very low, but Dr. Sharafat explained that six months is very young for the test and kids who don't eat a lot can have lower numbers.  She monitored DD until DD was two by taking blood and DD's hormones got higher and stabilized.  We are supposed to go back to her if DD falls off her own curve (she's maybe 3rd percentile for height and not on the charts for weight).  She was very nice and informative and was willing to listen to my kazillion questions and worries.

Good luck!  I think you will like Dr. Rosenbaum and hopefully he can help figure out what's going on.
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