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[quote=Anonymous]unless you live with a chronic illness all day every day, you just can not understand it. everyone is so full of their you should just x y z or why dont you...it can be really challenging. we also spend so much time at dr appts and being poked and prodded that this is one more thing to add to the list. then there is the fear - maybe of finding out that you cant do what some PT who has never worked with your disease before pushes you to do. or that what you do today will wear you out for the rest of the week. its so strangely complex and the need for logistical management to manage what needs to get done and what your body can do are baffling. give your mom a break, shes doing her best. [/quote]
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