Reply to How to support a family just receiving an autism diagnosis?

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Reply to "How to support a family just receiving an autism diagnosis?"

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[quote=Anonymous]My 2 yr old DS was just diagnosed with autism 2 months ago.  We knew it was a strong possibility, but getting the diagnosis was especially difficult.  I can only speak for myself, but I know that people telling me "I'm sorry" rubbed me the wrong way...and what I really preferred to hear was "I'm here for you if you need me" coupled with a hug.  That's it.  Because it doesn't take long to feel alone when you're in this position (hence why I found this forum).  I also echo the others who said to make sure you continue to include your friends in things that you do (get-togethers, playdates etc) because it doesn't take long for the isolation to become a reality.  I am just starting to feel it with playdates now.  I belonged to a small playdate group and finally felt the courage to tell the others about my DS getting his ASD diagnosis...because I felt that we were close enough and that I'd have their support.  At the time, they were extremely supportive, and even "called out" those "awful mothers who would think differently of my son and I".  Well, fast forward a few weeks....the playdates have become less and less.  I hosted one at my house last weekend, and while they did attend, they didn't really include me in their conversations...and one even slipped about how they'd had a playdate (that we weren't invited to) and how fun it had been.

Sorry to go on a tangent...but the latter part bears repeating.  Your friend will really need someone they can count on to be there, and someone who will continue to want to be a part of their lives.  If your friends live in NOVA, I'd be happy to provide my contact info so we could do some playdates together.  [/quote]

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