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Kids With Special Needs and Disabilities
Reply to "How many of you are the prime care taker of your special needs kid?"
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[quote=Anonymous][quote=Anonymous]Single mom. It sucks. That is all.[/quote] Also a single mom of a child with multiple disabilities and Dad doesn't attend anything. I schedule the Nanny to come with me to all appointments. There is no way I could manage otherwise. We are often at the hospital for 4-5 hours min as he requires a lot of testing on a regular basis. If you're in DC and have HSCSN you could possibly get hours for someone (nurse/home health aid) to attend appointments with you or use respite for help. I'm now divorced due to lack of help/involvement from DH so I'm in no position to offer advice there. Hang in there. I'm hanging on by a thread but somehow we manage to make it through. [/quote]
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