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[quote=Anonymous]I have a child with Ds. I haven't read all the responses to your questions, but I'll answer them and add my comments

- you can expect to take your child to the doctors' offices X times a week  EVERY CASE IS DIFFERENT, BUT NOT MUCH MORE THAN USUAL. WE DID AND DO ALL THE USUAL WELL BABY AND CHILD APPOINTMENTS, AND IN THE PAST YEAR, I THINK DC HAS HAD 2 OR 3 SICK VISITS. ONE OF THOSE WAS FOR REFLUX. WE ALSO SEE A GENETICIST, ONCE PER YEAR, AN ENT AND OPTHALMOLOGIST ABOUT 3-4 TIMES PER YEAR.  
- counties provide great services in these areas; expect a social worker to go to your child's daycare I WOULD EXPECT EARLY INTERVENTION SERVICES TO GO TO DAYCARE. SERVICES AREN'T GREAT THESE DAYS--YOU NEED TO KNOW YOUR RIGHTS.
 - you will need to budget this much for out-of-pocket expenses not covered by insurance DEPENDS ON YOUR INSURANCE. WE DO ST AND OT PRIVATELY, BUT OUR INSURANCE PICKS UP A SIGNIFICANT PORTION
 - it's not really realistic for two parents to be working full-time in demanding jobs (or it is!) DEPENDS ON WHAT SUPPORT YOU HAVE--FAMILY, GREAT NANNY, FLEXIBLE SCHEDULE, SHORT COMMMUTE?
 - you need to consider what retirement will or won't look like  DEFINITELY NEEDS TO BE LOOKED AT MORE CLOSELY, BUT NOT IMPOSSIBLE

Having said all that, each child with Ds is different. Our child didn't have any cardiac issues, no gastro issues and was born at 38.5 weeks. We had a longer hospital stay only because of feeding issues and have never been in hospital again. Then again I know kids who have had cardiac repairs and other surgeries and are still doing really well.

Therapy appointments are tedious, but if you get decent early intervention services, they will come to your home or daycare. We did not have great EI services, so did a lot of private therapies which were time consuming but worthwhile. I would say I spent and still spend most time on education activities--reading, promoting language, developing math skills, working on self help skills, etc. I have a background in education, so I find it interesting, but time-consuming.

Hope this somewhat disjointed post helps. Feel free to ask more questios. I'll try to check back.

- and other factual things I am sure I haven't thought of [/quote]

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