Reply to When should we think about a group home for our severely disabled child

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Reply to "When should we think about a group home for our severely disabled child"

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[quote=Anonymous]The key is qualifying for the long term funding stream in your state.  Then to find a provider with the trained support staff to provide the services your son or daughter needs to meet their multiple needs.  A  Special Needs Trust SNT can provide for extras that your adult may enjoy or specialized equipment that Medicare/Medicaid may not cover.  If there is a sibling( s) then finding an organization or equivalent of an adult care coordinator to check in periodically to give one peace if mind when you are not there or able to.

The options not to involve a sibling are much less for the many parents whose disabled adult child will not meet then” level of criticality” to receive the 24/7 waiver option unless they have the financial means to locate a provider with private pay.  There are always Emergency 
Slots but all would like to avoid this and be able to make a plan - difficult always and always subject to change … - but usually will 
involve a sibling( s).

It is unfortunate that a federal law prevents the option on having the ability to look at a CCRC for a parent and an adult disabled DS or DD until the person is age 62.  It might be interesting to advocate for such an option or develop an option with a provider.[/quote]

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