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Reply to "preteen son has ARFID- protein powder or other suggestions?"
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[quote=Anonymous][quote=Anonymous]Push for a referral from the pediatrician. See if she/he can get you in with a specialist or a feeding disorder program at a hospital (NOT eating disorder, but feeding disorder). That would be better IMO that any specific provider because sometimes these issues are multifaceted. Someone mentioned GI and that is important too-often there is a GI doctor on a feeding disorder team. Plus your child will likely need a workup to make sure there aren't already significant nutritional deficiencies. Our child did feeding therapy as a toddler and the issues warranted an OT with a specialty in feeding disorders and GI doctor for silent reflux. A nutritionist could miss the bigger issue-at the very least I would work with a dietician who has training in feeding disorders. When you advocate for your kid sometimes doctors don't take things seriously until you push-be politely and assertively pushy.[/quote] Our pediatrician gave us terrible advice and referrals - not all are well trained. And this was at Capitol medical. So do your own research too. This list serve is also helpful https://feast-ed.org/[/quote]
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