Reply to What’s the “right way” to say “profound autism?”

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]The way people try to describe the functional level is getting absurd. Using paragraph long round about ways to make it sound clinical and politically correct. And leaving those who read it with little idea of the ACTUAL level of the person. I really just don’t get it? Who is it actually for?[/quote]

For most people, a single word descriptor -- "level 2" or "needs moderate support" doesn't actually tell me anything about what the student needs. Yes it's more words, but saying that they need X to engage socially, have Y sensory sensitivities, and Z is how they communicate actually tells me how to provide support.[/quote]

I think you missed my point entirely because i’m actually agreeing with you-I’m saying that saying something like level 2 and using sentences like “Is prone to irritation due to sensory needs” doesn’t tell me what I need to know as someone working with them-I would much rather read “throws themselves on the floor with seemingly no trigger and requires a very specific sensory toy that will be provided to you to calm down”. It’s all too clinical and lacks the actual information people need to help the person. [/quote]

Nobody should ever write a report that says any of this. [/quote]

They absolutely should. Let’s all agree that providing the very best services is everyone’s main goal.  The more someone can prepare and be ready to help someone comes from having the clearest information about their functioning level. I cannot tell you how many providers have to constantly change their entire plan for assessment/treatment because they weren’t given accurate information about a child’s level. For example describing a child as “verbal” because they scream (but the child was very clearly nonverbal). Preparation time spent to provide the best services goes out the window when people can’t truly be honest about someone’s level of functioning. All it does is delay/cause frustration for everybody involved. [/quote]

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