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Eldercare
Reply to "Unexpected aspects of dementia"
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[quote=Anonymous]I think for me, its trying to address the situation at that moment, only to see that all my efforts are for naught because the next day its like it never happened or you've hit the next step. So like, technology: I spent a lot of time getting fire stick and alexa to work on her TV, because she complained the tv was too complicated. Created a guide to using alexa, laminated it. Worked 2 weeks and now she's lost the rmote, the guide and no longer cares. Or, dropping everything to addres what seems completely pressing, only to realize it doesn't last. Example, for several days this past week, culminating in friday, my parent talked about going stir crazy in their assisted living (because I had traveled for the long weekend and did not take them out), to the point where they called multiple times friday saying they had no friends, no reason to live and were tempted to walk in the road and get hit by a car. They had walked outside in the street but came back in. While the dementia is talking the distress is real. So I spent significant time trying to figure out how to deal with this situation, including upping her care to have someone take her out weekly to wherever she wants to go , movies, shopping, musuem. This is on top of personal care aides I hired and an expensive assisted living facility with meals, activities, cleaners, etc. Today I tell her about the new plan, how I've arranged for wednesday outings, and the first one will be to XXX and she says that she doesn't want to go with a stranger and anyway, she feels fine. When I ask her about what she was saying (aka suicidal ideation) she is baffled and said, "oh that must have been a joke." So, you're left always scrambling. You think you have one solution, but then something else happens and suddenly you're back to square one. [/quote]
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