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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Can I just say it is so crazy that we have to pay thousands for evaluations when they won't even test for autism unless you go to someone specialized in autism and/or pay extra? What is the role of the evaluator if the family has to come in already knowing what diagnosis they need? Is it really that difficult for a doctoral level professional who evaluates people for a living to administer the ADOS?[/quote]

It’s crazy because they are money-making operations exploiting the desperation of parents. Just put your name on the list at Childrens, KKI and Mt Washington. School testing is also very good, contrary to beliefs here, and they’re supposed to repeat it every 3 years. We had school testing followed by Children’s testing a year later and the school report was actually more insightful. [/quote]

It's not just beliefs. We had a provider, who is an amazing provider herself and whom I have an enormous amount of trust and respect for and is not affiliated with any other practices, say that the reports she read from Children's and KKI were not great. Very cut and paste.

Also, this is kid dependent. Girls have a tendency not to get diagnosed with ASD until much later than boys despite similar symptoms. Mine was definitely at risk of being in that boat. DD may not get an IEP anytime soon but the diagnosis and detailed report is so helpful.[/quote]

That’s one person’s opinion. The road of SN parenting is long, and we cannot shell out $1000ss every time someone claims “this is the gold standard!” A Childrens or KKI evaluation is going to be absolutely adequate for diagnosing autism. Everything else in the report (suggested accommodations, educational impact) tends to be guesswork anyway. For designing individual accomodations it’s much better to have an educational consultant with an education background who can help with the IEP. And even with that, the needs are going to change over time, and it’s always an ongoing process to see what works. No matter how many times you pay Stixrud or CAAT or whatever $5000 for a “full neuropsych,” they cannot “prescribe” an IEP or set of therapies that is going to work on that one-off basis. [/quote]

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