Reply to Essay theme: chronic illness

Forum Index » College and University Discussion

Reply to "Essay theme: chronic illness"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous]I think T1D is different from MS or Lupus (which my daughter has). Usually (!) the issues w well known and understood treatment protocols are okay. Every reader will say, oh, like my brother or my bestie from high school.  Shows personal health management and reason for career interest.

But I worry OPs daughter is like mine. It’s all a giant question mark.  Monthly labs that can be routine or can send her straight to the ER w liver biopsies, total med change, hospital stay followed by more questions.  She needed a single room because she really needs to sleep by 9. No drinking at all ever.  Etc.  She could be read, correctly, as a lot more than can be handled by their med center and possible issues with teacher allowances, housing issues, etc

My daughter didn’t mentioned and got into the 2  HYPSM schools she applied to.

I want to advise the OR to investigate health insurance if the college is out of state . The plans colleges offer may not be up to it. And get a team in place there that is willing to loop parents in at least sometimes.  Things like MyChart won’t be available once the kid is 18. And some MyCharts aren’t read between hospitals, which is crazy is something happens in one state and you bring her back to your state for care.

I’m glad my daughter got to attend her dream school and it’s was 95% fine. But the 5% was worrisome med stuff and even tho the college didn’t have to deal w much of it, I’m glad we didn’t mention it and scare them off.

[/quote]

New poster - thank you for this.  My DD is a high school junior with lupus.  She too will likely veer away from mentioning it in apps so schools don’t fear her needing time off etc.

I’m curious what accommodations your daughter has asked for?  I’ve thought about the single room due to rest and germ issues - since are takes immunosuppressants long term.
[/quote]

Lupus patient and  mom here--I suggest not mentioning it, my disease is so unpredictable,  someone who is  a bit more knowledgeable of the illness may raise red flags about possible issues and how to handle on campus. Once admitted I would really push for accommodations, but as we know even they are vague--what one person needs is not what the other one does. The best lupus centers are at Hopkins and MGH--most regular rheumatologist dont even know how to treat, would suggest picking college driving distance to Baltmore or Boston. UCLA has also a great center but if light sensitive would stay away from So Cal.[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics