Reply to What were the benefits of going on hospice?

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[quote=Anonymous]I posted previously about my dad losing medical care due to going into hospice care at home. Someone above posted that it’s not a big deal to go in and out of hospice. I disagree with that because you lose your doctors as I noted above. But I also wanted to add that you lose your equipment. They gave us equipment that we trained all our self paid caregivers on which took a lot of effort for your lift, bed, wheelchair, etc. When they terminated hospice after six months because he didn’t die, they came and took all that equipment. We were left abruptly with no hospital bed, no wheelchair, no way to lift him.

Also someone above suggested talking to Hospice to help you make the decision. That’s fine, but just be aware that these are profit making enterprises, and they want you to say yes to Hospice, and will urge you to do so. You can’t rely on them to give an unbiased opinion,

They get paid a certain amount per day by Medicare. I think it’s something like $30,000 a month. They get that regardless of what care they provide so they are financially incentivized to do as little as possible.

I also just witnessed another relative go through what someone described above, were they basically morphine them to death.

Do not put your parent in hospice until they are very much dying. Like don’t do it until you think they are within weeks of their death

Try to see if palliative care exists in your area.[/quote]

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