Reply to Neurologist recommending anti-seizure meds with no actual seizure yet?

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Reply to "Neurologist recommending anti-seizure meds with no actual seizure yet?"

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[quote=Anonymous]To give those of you with young kids hope / my son was having spikes almost every other second in his sleep from 4-11.
His behavior and learning suffered greatly. At 12, we have added amantadine. We just got an almost normal eeg. Hopkins is using this med for refractory epilepsies. It also has cognitive improvement effects and may help significantly with adhd. It’s been a huge game changer for us. My kid could not behave when he had a ton of seizure activity. He could not learn. He did not get sleep. You have to medicate your kid if he is having electrical charges all night long. He is being majorly impacted by it, I assure you. My son had one seizure in his sleep when he had not had one for a few years and it was terrifying.

Op, if you see activity on the eeg like you did, no neuro is going to give you a second opinion. SUDEP is terrifying and constant brain spikes while sleeping is always going to mean meds. It’s not if but when they will seize. A cold, a fever, a late night, too many screens because it’s coming from the occipital lobe. Been there.

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