Reply to Anyone care to play IEP Meeting or related email or phone call BINGO?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Anyone care to play IEP Meeting or related email or phone call BINGO?"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous]How about...someone on the team talks to you like you are ignorant and don't know your rights and have never read anything about your kid's disability. Or someone on the team thinks they know better than you do what your kid needs AND said person thinks she knows better than the top person you had evaluate your kid and write a report.[/quote]

My niece (adult now) has epilepsy. Besides grand mal seizures she had frequent partial psychomotor seizures in school--like she'd randomly get up and walk out of the room--and absence seizures. When she was 14 she was admitted to a medical program where they had monitors on her and simply waited for a seizure to happen so they could get complete EEG (and I think other) testing results, plus they videotaped the seizures she had there (she later had brain surgery, which almost eliminated seizures, but only for a year or two). My sister had been battling the district for a long time by then (refused 504 plan, refused IEP, the poor girl was ridiculed by classmates because she would sometimes urinate during a grand mal seizure, and in 10th grade her mom discovered she ate her lunch in the bathroom to avoid facing a few hundred other teenagers in the cafeteria).

So, my sister meets with the principal and shows him the evaluations and recommendations, and he says "well, you may be able to pull the wool over the doctors' eyes but I know what's really going on here" and further that "parents lie all the time." My sister was dealing with some major medical problems herself, her husband's crappy job had him on the road most of every week, her daughter was increasingly depressed and more than once actively suicidal. Over the next year they basically threw in the towel, my niece tried their alternative school but could not maintain their strict attendance records (she'd be very tired for a day or so after a seizure and was always falling asleep) and got a GED. (She's doing. . . ok. She definitely became a functioning alcoholic although her seizures are mostly associated with her period; she twice made serious suicide attempts that put her in ICU but that has not happened for 4-5 years now, her love is restaurant cooking and she hasn't been unemployed a day in her life since she was 15--she's 30 now. When she goes to work in a new restaurant she tells her coworkers how to respond if she tells them she thinks she is about to have a seizure and how long to wait before calling 911, since usually that is not necessary, and only once has she had an employer who had an issue with her epilepsy). 
[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics