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[quote=Anonymous]My father was recently in hospice.  OP is correct and not many people realize that hospice is a Medicare program and does not provide much.  It's coordinated nurse care where they handle and provide meds and that's it.  It is not someone to stay with the person.

Some states have hopsice homes that are free to the patient and family.  They are nonprofits that are typically run by a nurse who is paid through donations and fundraising and then staffed 24-7 by trained volunteers and possibly a paid overnight person.  The Medicare hopsice nurses than have a relationship with the hopsice home and come through regularly to administer meds, etc.  Families provide all the food.  It is a great option.  It is typically in a house that has been converted for this purpose but still feels like a house.  Very few patients.

If you can afford it, there are also more institutional hospice care settings (a wing of a nursing home or independent living, etc.)

In general, with an elderly parent, you have to be thinking several months ahead all the time of their likely next phase and trying to get the pieces lined up for when the crisis moment hits.  There really is very little time for catching your breath it feels like.  My best advice is research and anticipate.

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