Reply to Extreme reactions to insinuating weakness

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP, what you're talking about is "interoception" and it can absolutely go along with autism. Maybe she's getting mad because she can't understand what you're saying because she doesn't perceive it.[/quote]

Edited to say, you're describing a lifetime of poor interoception. Have you seen an OT for these issues?[/quote]

Omg. Op here and you just completely blew my mind with this information. I had never heard of this but it explains SO much. The confusion, the inability to explain any bodily sensations, the over sensitivity to certain things and under sensitivity to other things.

Thank you, this is life-changing. [/quote]

You're very welcome! I really hope it helps. I was an adult when I started to wrap my head around this, and I was genuinely stunned to learn that other people can feel their own heartbeats etc.

Don't be afraid to try various OTs and PTs until you find one who truly gets it. You can ask for a phone consult with just you, rather than taking the time to bring your DD in. If they can't give you a few examples of what they'd try for improving interoception, they're not a match for you.
[/quote]

Thanks for the advice. Some things I feel like we do already- the routines are helpful, and she uses timers.

I do worry how she will do in 6yrs when she goes away to college. Will she remember to eat? Will she dress appropriately for the weather? Will she go to sleep on her own? Will she burn herself out or spend 3 days straight working on something because no one is there to remind her to eat and sleep and shower? If she gets sick, will she realize it?

What was your experience like going away from home or he first time?[/quote]

Well, a lot of college students are bad about those things! Yes, I did fail at self-care many times in college. I've passed out from hunger or dehydration a few times, and I had some roommate conflict around hygiene and sleep habits. My interoception is good enough that I can tell when I have a fever, and visually I can see if I have a rash or bruise or other physical injury, so I've always handled things like that pretty well.

I think it depends on whether your daughter will have the skills at that age to manage things better, and whether she'll be motivated by social reasons or whatever other reasons. I eventually learned that I have to eat regularly to avoid passing out, and I don't like passing out because it leads to embarrassment and jeopardized me having a drivers license. In college I was told I couldn't work in a certain lab anymore if I continued to pass out. So that was enough motivation for me to make sure to eat. Try to figure out what will motivate your daughter if eating is a problem.

I think you need to ask yourself what goals are a priority in the near term, and I suspect going away to college is not one of them![/quote]

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