Reply to End Stage Heart Failure-Hospice?

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[quote=Anonymous]OP bumping with a frustrating update.

Mom released from hospital, back to her independent living apartment and unwell. I stayed overnight first night and quickly realized that she needed constant supervision.

Sibling arranged for 24/7 sitters/companions who help with ADL. Yesterday my mom had a follow up appointment with her regular doctor. My sibling (who has POA) accompanied her and today I was told that next will be a surgical consultation about TAVR.Her doctor said since the patient wants to pursue surgery, great, let the practice know if she gets okayed for surgery and they’d go from there.So no hospice or palliative care mentioned,get an appointment with the specialist and take the same dozen meds.

My mom called me today crying and complaining that she is frustrated that she’s not getting better and feels worse.

There’s no surgery consult appointment yet and no idea when this will happen if at all. So we are waiting I guess. They both are delusional and in denial. I think it’s crazy to even consider a surgery of any type considering she is mostly bedridden and it’s all a pipe dream but no one can or will tell her this. No idea what stage of failure she’s in when I asked sibling said no idea.

I found an old email my mom sent detailing why she wasn’t going to have this heart surgery. I want to read it to my sibling and mom to discuss it but also at this point just let them do their thing.

I’m so tired.

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