Reply to Zebra or hard-to-see diagnoses: Headache+

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Assuming he had MRI? Seems like a miscellaneous collection of symptoms that aren’t related. But since you brought them up, there’s an outside chance it could be Ehlers Danlos. If he didn’t have a MRI, I might have other thoughts (that would be diagnosed via MRI).[/quote]

He had an MRI and an MRA. One physical therapist said the wrist pain could be due to joint hypermobility.

To me, that seems bizarre, because no one one either side has ever dislocated a joint or can do a good split, but maybe there’s something related that affects connective tissue without making people super flexible?[/quote]

A PP suggested Ehlers Danlos.  Hypermobility is a symptom.  [/quote]

I’m PP that suggested EDS. My kid has it. She has never dislocated a joint or done a split ( to my knowledge). EDS comes with a lot of weird symptoms and is not well understood or treated by physicians. We never thought of my kid as hyper mobile, but they got a really high score on the beighton test. We found it because she was diagnosed with a comorbid condition. There is a strange troll on DCUM, that basically denies that EDS is thing so hopefully we don’t lure her out of hiding. EDS is a real and diagnosed disease. I recommend you do some reading on it. I’m very sorry that your son is in so much pain.[/quote]

Thanks. I understand that a lot of doctors are skeptical about a lot of chronic pain type conditions. But, on the other hand, given that some of his symptoms are observable (example: his fingers are obviously icy to the touch), maybe he’s the lucky kid who will have observable EDS. [/quote]

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