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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Our son is 8.5 and has never been easy. 
-low tone (didn’t walk until he was 19 months and still is weak)
-high anxiety
-low iron
-restless legs
-poor memory (as stated in his test results)

But as he ages, more things become problematic and pronounced…or maybe it’s just who he is and nothing is “wrong”…?

He’s very sensory seeking.
He used to be a great eater, now he’s cut his diet down to a handful of acceptable food.
He’s generally unpleasant and rude.
He is very stubborn and obstinate; it’s nearly impossible to talk to him and teach him things.
He’s wildly immature…we’re shocked he’s almost 9 but he truly has the manners and behavior of a toddler.

I don’t know where to start. We will have an upcoming visit with a developmental pediatrician, but I really don’t know what to ask for. He had some test when he was four, and I don’t even remember what they were. That’s where they nailed down the anxiety, and the very low memory.

Im just… Overwhelmed. He’s a nice and sweet kid but I feel like we’re not doing enough for him.

Please be kind. :)[/quote]

This sounds nearly identical to my very difficult son who has been diagnosed with autism,  adhd and anxiety. 
He also has tremendous sensory and introception problems which lead to issued with knowing when he had to go, forgetting to drink water or eat when hungry. Couldn't bathe unless the water was exactly tepid, meltdowns, physical aggression etc.
He also had low iron saturation and low vitamin d. Very picky eater, etc. 
He is now a very successful teenager both academics and with his interests. Has many friends though on the quickies side.

I suggest finding a practitioner who is familiar with hypermobility as most of his symptoms are classic signs of that. You will find the researcher in this area is sorely lacking but they have recently made some discoveries about things like the body 's inability to processes folate in kids of this type. * and so we supplement with methylated folaye or folonic acid. Note that a blood test will NOT show low folate.  Folate is in the blood but not crossing the blood brain barrier. I suggest supplementing anyway since its a water soluble vitamin and there are few effects from taking too much.
* I am not saying your child has this problem,  only that it is something to consider.

I am of the mind that most of the behavioral problems stem from a biological cause (low iron causing anxiety and adhd symptoms,  etc).
You will find most every practitioner has zero experience in this area but researchers at Tulane are doing good but slow work. You will find some help on social media, the Tracy Rodriguez is an Instagram account that talks alot about hypermobility and its comorbidities.

Please be patient with your child. It sounds very much like they are struggling with a disability that even their doctors aren't able to diagnose or treat - yet.[/quote]

pp are there any downsides to supplementing with methylated folate? I have been considering this for my child. [/quote]

None, I asked pediatrician.  It's just a more absorbable form of folate. Folic acid (which is a more stable and therefor cheap form of folate) should be avoided as much as possible because your body can only absorb so much folate. For lack of s better description- folic acid can "clog up" the receptors but not cross the blood brain barrier so results in even lower folate status. We watched where most folic acid was coming from and found it was mostly from pasts and bread. We easily switched to organic pasta and organic bread. Anything with enriched wheat will contain folic acid. Most multivitamins will also contain folic acid so we switched to methylated multivitamins.

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