Reply to talk to me about late stage Parkinsons

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[quote=Anonymous][quote=Anonymous]My uncle had it for years. It progressed faster once he developed cancer. Before he knew he had cancer there were more and more falls and other emergencies and he was sleeping a lot. He would have been better off in a facility that could handle it. It really did my aunt in and she declined rapidly into dementia from the stress even once they finally agreed to caregivers.

He chose not to treat the cancer and went on hospice. I visited him on hospice. He had moments of seeming totally lucid and normal and other moments where he was hallucinating all sorts of fun things (may have been the meds). He lingered on hospice for much longer than expected because people kept visiting.[b] They told us to stop visiting once everyone got time with him so he could pass peacefully[/b] . It was time and he passed peacefully. My cousins and aunt were barely sleeping and they all ended up with covid (when covid was still scary) from the lack of sleep. I say this because it is so important for everyone to take care of themselves, take breaks, get all the help you can afford.[/quote]

Unless he was in pain during this time (and he should not have been if hospice nurse was properly managing that), then I am unsure why anyone would advise loved ones to stop visiting someone at the end of their life when it is clearly bringing them joy.  I am glad he was able to pass peacefully though.[/quote]

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