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Reply to "talk to me about late stage Parkinsons"
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[quote=Anonymous][quote=Anonymous]This is OP--I can't really have a frank conversation with my dad's doctors in front of him because my parents are in denial. They are expecting my dad to "get better" and do not want to hear otherwise. And what do I know, maybe he will improve somewhat...but lately he hardly gets out of bed. We are alert to the issue of bedsores and the risk of infection/sepsis. [/quote] I’m so very sorry OP. Your dad will not just “get better.”Parkinson’s has its own dementia diagnosis and what you need to understand is that his is a dying brain, not a growing brain. The progression can be delayed by various things, but he will not just bounce back and regain functions or speech or clarity that was lost. Sadly, most people with Parkinson’s end up falling and the fall results in exacerbated traumatic brain injury. If this happens to your dad, please try your best to remember and help your mom remember that it is not the fault of whoever was “watching” him. Walking and balance are severely affected but so is the mind. And your dad may suddenly not recall that he is unable to get up and go at will. I saw just before this that another poster on a different thread posted about a woman named Tam Cummings. She is an amazing resource. She even gives out her personal cell to anyone who needs to talk to someone about their loved one with dementia. Get one of her books or look her up online to help understand a little bit more about what your mom and dad are facing. [/quote]
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