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[quote=Anonymous]OP here. Who would do a swallow study - ped GI, speech therapist, someone else?

21:31, can I ask what your LO was dx with? Just curious since it sounds like possibly some similar issues.

I feel like I'm walking a very fine line between pathologizing everything and overlooking issues because of fear. DS has seen a ton of doctors since birth due to my stubborn efforts to nurse. Our ped has seen him very regularly because she is a lactation consultant. We have seen other LCs, a speech therapist, and an OT. He was also in the NICU for four days for suspected infection after birth, but it turned out to be dehydration due to poor nursing (even though we were initially told not to worry). We are going to see a ped GI soon for reflux, and I am waiting for a call-back from the speech therapist who originally said she saw no oral issues (I contacted her again to see if she would consider re-evaluating).

The OT is who noted the low tone. When I got concerned, she told me not to freak out - that it was possible to have low tone and no other issues, especially since DH does. I asked our ped at the next appointment, and she said she was hesitant to get too concerned yet but said I could call EI if I wanted. I haven't because the website says they have to have a delay to qualify, and I don't think DS could be said to be missing milestones, even thought he does have other issues.

Why a geneticist? Why not a neurologist? How would we know who to see to investigate these concerns? Our next ped appointment is next Wed, and I will ask again. I don't want to force the notion that something is wrong when it might not be, but if there's anything we can do to help early, I'd like to do that. I feel constantly worried about his development, but DH and MIL think I am obsessing and creating issues that aren't there. I AM an anxious person, but I am not imagining symptoms.

I don't want to drag DS to a million doctors and subject him to unnecessary tests, but I don't want to ignore a potential problem either. His issues are fairly minor in intensity and seem like they could be symptoms of any number of things, or of nothing. I know "wait and see" is likely to help us narrow it down but don't want to wait too long either.

BTW, DS is gaining fine so far - up to 13 lbs from 7lbs, 13 oz at birth. He is chubby, but has a fairly small head. I don't think he would need a tube, as he is gaining well with bottle supplementation.[/quote]

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