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Reply to "Could you nurse your special needs child?"

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[quote=Anonymous]My son has low muscle tone and was diagnosed with a genetic disorder when he was a week old. Other children with his disorder however often don't get diagnosed for years. My son could never breastfeed and bottle feeding would end in his sleeping even with constant  tapping on the bottom of the bottle. Have you tried that trick?, it is is very effective in giving oral stimulation to keep them sucking. We had a g-tube placed for the first year plus although my child could consume some by mouth with a bottle but he was failure to thrive without the g-tube. Do everything you can to ensure that your child is receiving adequate nutrition for brain development in the first year...even if it means fortifying breastmilk to give higher calorie concentration/ feeding tube etc. You should ask for a referral for a nutritionist asap if your pediatrician can not make appropriate recommendations. 
Not to be alarmist, but quite honestly, any child with low muscle tone should be referred to a geneticist, especially if feeding issues are at play.  Low tone often does not mean there is a identified syndrome/ issue, but it frequently is the red flag for one.[/quote]

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