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[quote=Anonymous][quote=Anonymous]Here are our needs: He needs someone to manage his medications and feeding g-tube tube (aides will not want to do this).

He needs someone to adjust his bed, get his TV remote, clean up his diaper/urinal, help him sit up, help him try to walk if he wants (the rehab place claimed he was walking, I have yet to see it). I believe in reality he is likely to be largely or entirely bed bound. He will need help bathing/sponge baths. He will need help to ensure he does not get bed sores.

He is mentally competent and with it and is a generally pleasant person.  [/quote]

OP, most of these are not difficult things to care for at all.

Diaper/urinal changes are unpleasant but home health aides can handle that.

It's just the feeding tube and medications that are causing the problem. If you mom can't help with those, then it's going to be hard.

I would consider contacting an agency that specialized in ALS and MS and Parkinson's patients . people with really difficult care needs.

https://www.bayada.com/homehealthcare/services/adult-and-private-duty-nursing.asp[/quote]

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