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[quote=Anonymous][quote=Anonymous]As a person who was born with a very rare disease that makes me physically disabled and in chronic pain this documentary is very accurate about how you can get unlucky with one hospital or one doctor or one team who decide they know more than you, don’t believe you, dismiss you, ignore you, and commit egregious acts against you. I believe every single thing the father says happened, I believe the hospital staff and social workers went on a campaign to ruin this family and have zero remorse. It’s awful.

I watched my parents fight for me to be alive as a child, drag me to doctors all over the country hoping for treatment, listen to “experts” laugh at me, try to take photos of me, tell my parents I should be put in an institution. As an adult I now have to navigate this myself. The mother in this documentary sounds exactly like a mother of a chronically sick child. Remember Shirley MacLaine in Terms of Endearment - Give my daughter the shot![/quote]

I believe you op. My eyes were really opened when I had to deal with a temporary but significant medical issue for my otherwise healthy son. Explaining to each doctor what we’d already tried and trying to get them to believe/understand symptoms was absolutely infuriating. One doctor insisted I repeat an unsuccessful treatment before he would try anything else. I told him we were not going to put my kid through the side effects again just for his benefit. He got very ugly with me. I can easily see how these situations could get very bad, very fast. [/quote]

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