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[quote=Anonymous]My twins were born at 31 weeks.  My DS was extremely rigid as a baby - through 8-9 mos - bounced on his feet on my lap all of the time.  He also had torticolis.  We were referred to  a neurologist at Childrens who wanted to do an MRI but we declined - decided at his young age we wouldn't be doing anything different with that data.  We were already getting OT and PT due to torticolis through PIE.  Fast forward to 5 yr, and he still definitely has high muscle tone, but so does his dad.  Other than having strong legs, he's completely normal. His twin, on the other hand, does have very mild CP (you'd never guess looking at her) - we got diagnosis around 10 mos.  She was very clearly missing a number of "innate" reflexes, such as the step reflex, so she would NEVER straighten her legs when her feet touched a surface.  
Are you getting OT/PT for the torticolis?  Have you requested an evaluation through your parent infant education group?  Are you effectively managing your son's reflux?  Other than this, there's really nothing to do at this point.  And fwiw, it doesn't sound at all as though anything is wrong with your DS other than that he has nasty reflux.  [/quote]

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