Reply to My tinnitus could be a brain tumor

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I hope my experience gives you some reassurance. I had mild tinnitus for a few months followed by sudden complete one-sided deafness. My MRI turned up no acoustic neuroma. It sucks to lose hearing but I was relieved to not need surgery. What I learned from my ENT, audiologist and the FB support groups I joined is most people do not have a tumor but they do have to investigate. Generally it remains unexplained and is chalked up to a virus or auto-immune issue. Like you, most people seem to get bad advice from their PCPs before finally making their way to an ENT. It is considered a medical emergency to lose hearing and quick intervention with oral steroids and injections can on occasion restore it. In my case, I was seen immediately but my hearing didn’t return. [/quote]

Thank you. I was given steroids but I’m almost done with those and nothing is different.

I’d be fine with having the neuroma, [b]because at least it could be removed and prevent further damage[/b].

I’d rather have the neuroma and be deaf in one ear than have Meniere’s and go deaf in both ears.

[/quote]

Removing the neuroma can cause complete hearing loss, particularly if the tumor is large. My husband has known about his neuroma for years.  The bundle of nerves it sits on controls facial muscles, hearing, and balance.  The current plan of action is watch and wait.  He gets an MRI every year to see if it's growing.  He is slowing losing hearing in his right ear and has had tinnitus for awhile now.

Since surgery can pretty much kill off all remaining hearing in that ear, he's waiting until it becomes absolutely necessary.  There's also the risk that it damages the nerves that control the facial muscles and balance which would just compound the problem.  [/quote]

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