Reply to Sometimes/ most of the time- I really hate being a caregiver

Forum Index » Eldercare

Reply to "Sometimes/ most of the time- I really hate being a caregiver"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]
OP - Is the relative a sibling of your husband who likely gets SSDI based on the adult child benefit of the parent?  Have your in-laws dropped out of caring for their child for whatever reasons?    If this is the case, your DH should put the pressure on them to at least contribute financially to the sibling’s support.  It sounds as if as well intentioned as you are in trying to help, that this person is confined to an upstairs bedroom in your family home for the rest of their life?  Please explain why???

—  What is the official diagnosis of the young adult?
-   Does the adult have a condition like Cerebral Palsy or others degenerative physical conditions with limited mobility?
- Is the adult cognitively impaired?  I’s the adult able to make decisions on their care?
-   Does the adult use a Walker or a wheel chair? What would be needed to get the person to the main level of your home?

You are well intentioned, but from the description you have shared, you are describing a bedridden young adult in an upstairs room not even joining the family in the home for a meal.  It seems uncanny that there is no effort to get this adult to the main level and connected to local services.  Perhaps you do not know where to look for help???

- You and DH need to get the adult a Case Manager at the local Developmental  agency  to help you sort out programs and options for the relative. In Virginia it is the local Community Services Bosrd.

- The Case Manager could get the person evaluated for any possible services under Medicaid such as in-home personal care support, community day program and there are some serving those with severe physical disabilities.  Also, the in-Home person could do activities there with the adult is transportation out is so difficult.  There can also be so many hours a year for respite so your family can get away.

- The Arc in your area would be another source to know about services and may have a day program option. AND or know if providers to help you out

- The Easter Seal group in Sikver Spring MD would be another resource about services to the physically disabled.

-  You need to start to develop a budget now for the young adult starting with 30% going for rent and utilities and other basic expenses ad food, health related supplies, clothes etc.  The idea is to see what comes in monthly on SSDI stays under $2,000 in total in the persons name to have the person qualify for Medicaid as well as the Medicare one May have.  It is Medicaid that will pay for 24/7 housing options if you. An’t do it and skilled nursing as needed.

- Then you could use what you receive to possibly rent a stair lift to see if the individual could at least get to the main floor of your home.

- The young  adult needs to qualify for Medicaid for present and long term support needs because with increasing physical needs, he/she may well benefit from skilled nursing.  THe ARC is one place that might tell you about some housing options.

[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics