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Expectant and Postpartum Moms
Reply to "Fetal Echo - IVF - Abnormal finding after normal anatomy scan"
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[quote=Anonymous][quote=Anonymous]This is the PP who originally recommended Donofrio. I'm sorry you're dealing with this OP (and ignore everyone saying you are jumping to conclusions). Our diagnosis was similar (abnormal blood flow issue) but they couldn't tell how it would affect baby once delivered. It was one of those conditions they had never seen at CNH. We were also given a few possible outcomes so I understand the highs and lows you are probably thinking of. I had quite a few moments of "will I bring a baby home". One thing that helped me was knowing there is nothing I can do about baby's condition other than ensuring she has the best care team and taking care of myself. Someone mentioned the NICU at Children's. They have a specific Cardiac ICU that is 20-something beds and private rooms. It was not how we wanted to spend the first few weeks of our daughter's life, but it was so comforting knowing there were nurses and doctors who specialize in cardiac issues. Best of luck, I hope your follow up appointment gives you more clarity and you have a healthy and happy baby. [/quote] Op here. Thank you so much for sharing your story, your compassion and understanding. I think we are getting to a place of what will be will be and let's control what we can (as you described). It's so helpful to know the children's nice is so personal and specialized and that we may not need to worry about thinking about a hotel stay and more in a different city. I'm so glad things worked well for you in the end.[/quote]
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