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[quote=Anonymous]OP- I feel for you so deeply. I have an autoimmune disorder that presents as chronic pain, fatigue and arrhythmia/low blood pressure.  I have found some relief from medication, but still have approximately 15 days out of every month where I feel terrible. I have two kids under 6.

All of the above tips are really great- particularly the one about creating a room for your kids to safely play while you rest.

I also highly recommend talking to your children about your illness. I say "My body needs to rest right now." or "I am not feeling well today, so I need your help with _____". I used to feel guilty about that but now I see that both my kids are extremely empathetic, and they are willing to take on additional tasks when needed. They also have learned to play really well independently, which is such an important life skill!

Another thing that has allowed me to let go of some of the guilt- I am really intentional about quality one-on-one time with each of my kids. We do lots of movie nights cuddled up in my bed and craft projects and drives to see the monuments downtown. I make sure that we have happy memories sprinkled in each week, so that when I do miss the basketball practice or I park them in front of a movie so I can lay down, I don't beat myself up over it. I know that when they remember their childhood, they will know they had a fun mama who loved them hard.

Hugs to you. Chronic illness is so draining. Do what you need to do to keep on going- even if that means learning on the help of others!![/quote]

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