Reply to Genetics: Type 1 diabetes and celiac, TrialNet?

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Reply to "Genetics: Type 1 diabetes and celiac, TrialNet?"

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[quote=Anonymous][quote=Anonymous]What happens if you do everything you can and your child develops either condition (or a completely different chronic disease)? It's very easy to think you can avoid something just because you do everything right, but things will go wrong, things you can see coming and things you can't. You should identify resources now that you can go to later if needed (support groups, couples therapy, individual therapy, spiritual advisers). [/quote]

Then, even if I do everything and T1D happens, I can look my kid in the eye with a clear conscience and say we did everything within our power to make sure you’d be cared for health-wise. I know myself really well, and if I didn’t at least go low/no gluten I’d question the what-ifs and be burdened with those what-ifs for the rest of my life.

The medical professionals haven’t been able to quantify risk at all and say it’s all autoimmune and unpredictable. Um, 3 people with celiac, 1 with T1D is not. They told hubs to get carrier screening. And said kids might or might not have it. Medical journal articles suggest Asians have a far lower prevalence, and we’re already gluten free already (ie. Dinner: rice, veggies, baked chicken).

We did reach out to 2 diabetes doctors, 1 university diabetes head, 1 celiac specialist, plus 2 doctors and 1 gyno. [/quote]

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