Reply to Genetics: Type 1 diabetes and celiac, TrialNet?

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[quote=Anonymous][quote=Anonymous]This is totally anecdotal but my BIL has Type I and both their kids got it and one got Celiac as well.  My sister is having a rough time of it.  Their lives revolve around food and sugar and 504 plans.  She can't leave them with a babysitter for any length of time; they can't go to camp (except diabetes camp).  It's not an easy life.[/quote]

Thanks for this perspective. OP here. It's the daunting reality I could end up facing. Though, I'm curious as to likelihood of people with Asian ancestry having T1 diabetes (I'm part Asian). Asians according to medical literature have one of the lowest incidences of T1D. Were both sides of BIL/your sister's family the same ethnicity? (You don't have to answer that if you don't want to).

My main fears: that my math skills are so horrendous I can't calculate blood sugar, and that T1D would bankrupt the family and create enough marital stress to cause divorce (I've known people to whom that's happened).

Our steps going forward:
1. Hubs gets carrier testing done
His family: celiac; Hashimoto's thyroid disorder; him: T1d/celiac
My family: Hashimoto's thyroid disorder
2. Adopt a low/no gluten diet during pregnancy (I found some really delicious GF crackers that are a viable saltines substitute)
3. We register future kid(s) for TrialNet online (earliest age they take is 2.5 yo for T1D antibody screening)
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