Reply to We've been dating for less than a year. Now he has a serious, life-altering illness.

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Reply to "We've been dating for less than a year. Now he has a serious, life-altering illness."

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[quote=Anonymous]Ugh, this is so tough. First, it is possible that he can heal pretty well from Lyme but he really needs to be treated by an LLMD-google DC Lyme Clinic and a world famous one will show up-his treatment has worked for our family.

If he only gets a few months of treatment, it will not work. It takes several years and that doesn't necessarily mean taking antibiotics daily. However, it can also be several years before he's doing well enough to participate fully in life functions. That is the hard part for you. I have a family member who I'd hate to see broken up with over this god-awful set of diseases but you have to do you. Hopefully you could remain a good, supportive friend if it isn't in the cards to continue romantically.

Honestly, even if you decide to break up, you obviously care deeply about him so I would suggest helping him make sure he's getting the sufficient treatment, which unfortunately for his case means it's not via CDC/old ISDA recommendations because he undoubtedly has multiple tick infections at this point.

JHU is not normally recommended for late stage Lyme but there is a researcher there who just published this http://www.discoverymedicine.com/Jie-Feng/2019/03/persister-biofilm-microcolony-borrelia-burgdorferi-causes-severe-lyme-arthritis-in-mouse-model/

so perhaps he could fight for that treatment if he goes there but he will likely need treatment with other drugs for the co-infections.

Also he is immune suppressed so he shouldn't be given steroids unless his life is in imminent danger (typically not with these infections despite the dire situation he's currently in).

Finally, there may be days when he can get out in a wheelchair but you'd have to be willing to push if manual. Things like hiking are unlikely but things like weightlifting, sweating it out in the sauna etc are beneficial for him and you both could do. It will be daunting as most patients get even worse when treatment starts and that can last 1-2 years or more. Just trying to give you a sense of how it could be although it sounds like you may already have an idea of this. Mental illness caused by inflammation and brain level infection is also very typical but can usually be treated successfully once healing is established.

Good luck to him and you. [/quote]

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