Reply to Gettnig evaluated for PANDAS/PANS

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Reply to "Gettnig evaluated for PANDAS/PANS"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I would get another opinion before going to an "expert" on PANDAs.[/quote]

Why? If you had a very specific type of cancer or neurological disorder you would seek out that specialist wouldn't you? A parent who is concerned about possible PANDAS/PANS SHOULD seek out an expert in order to RULE IT OUT! The 2-3 national experts are professionals (trained at Georgetown, Johns Hopkins, Columbia, etc...). None of them are going to falsely identify a patient as having a disorder if they don't have it. Jeez DCUM. PANDAS/PANS is diagnosed by multiple data points including at a minimum blood serum results and observable symptoms. A motor tic could be Tourettes, it could be PANDAS. A specialist will help figure it out.[/quote]

Obviously, because it's not clear that she acually has PANDAS; or that she needs long courses of antibiotics or IVs. The fact that there is one single cult PANDAS doc that people fly to from England actually suggests fringey practice. Take your kid to a regular neurologist and infectious disease doc. [/quote]

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