Reply to Best school for a child who is smart, but has SEVERE motor delays?

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Reply to "Best school for a child who is smart, but has SEVERE motor delays?"

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[quote=Anonymous][quote=Anonymous]
OP - Have you had an evaluation from  a developmental pediatrician as to what the root cause of lack of meeting milestones in gross and fine motor skills indicates in terms of any specific condition?    How much PT and OT has your DS received in the early years?  Is it "hand-on" or this new "coaching crap".?
Has anyone given you a prognosis?

If you have been told that he needs the hours of PT, OT and Speech that St. Coletta might be able to offer him, why not consider trying it for one year and supplementing the basic  preschool level academics.  The school  is almost year-round so there woukd be little loss of skill.  One year there might be the best opportunity to see progress or not and adjust your expectations on mobility etc.  If DS makes gains, then you coukd consider a second year there and then go into a more local or recommended school.   If the amount of therapy there is paying off, then you might pay for an enrichment teacher or even a tutor to work on language arts and math skills.

Check to see how much PT, OT and Speech other school districts would offer and in what setting and to meet what goals?  Your DS has severe motor delays which if St Coketta's might best address, consider it as  DS is young and has time to then be in a more academic environment.  If he uses a wheel chair the school  and play ground is compltely accessible.  I know of the school from  a daughter who worked there years ago.  I also had  daughter with very low  tone who who benefitted from PT, OT, Speech and AdaptivevPE as years ago public schools followed the "medical model" of therapies, but that is no longer the case.

I also can say that the Easter Seal day care center is an inclusive setting because two children of a college girl,I used,to have doing things with my youngest has kids enrolled there for that specific reason.  In any case there is no need to rush into kindergarten at age 5.  YourvDS may well benefit from two years in a good setting if he is making progress.  In any case helping him to find a consistent communication system to be able to relate what he knows might be the most important focus.[/quote]

OP here. Sorry for the delay, we went on vacation.  We have a genetic diagnosis for him. It is so extremely rare that I don't want to say what it is, and possibly lose anonymity. But one of the universal characteristics is extremely low tone that with lots of therapy often improves somewhat over time. Averages age to walk is 4, but there is one child that walked at 10. We have been very aggressive with therapy. He's had 2x per week, an hour each session of PT, OT and ST for years.

Your comments really get to the heart of my questions concerning St. Coletta's. If they truly work on skills all day long, I agree with you, he could benefit greatly' and still has time for academics later. But as another person said, he needs to be around peers with complex language to thrive also. I guess I just need to start visiting some schools. [/quote]

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