Reply to Universal Healthcare UK - Baby can't have treatment in US

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[quote=Anonymous]I have a rare disorder, it's congenital so I was born with it.  Throughout my life there have been a multitude of doctors who have "life saving" or "life altering" treatments that they have offered to try on me.  Basically, these doctors wanted to experiment on me, with drugs, gene therapy, surgeries, etc.  My parents basically said no to all of them.  As an adult, I did travel to France to participate in what I had thought was proven gene therapy for my condition, that my US insurance wouldn't cover.  Within one week I almost died, it turned out the doctors had lied to us, they had never tried it on someone with my gene mutation.  Using humans as guinea pigs is very dangerous.  I understand the desperation of these parents, but IMO this US doctor is using this child's body as a voodoo doll experiment.  It's so unethical to give these parents any hope by this doctor who says "well, my treatment has kind of worked for other kids with other conditions so what the hell I see no reason it won't work on you."  The child has no brain activity.  It's basically Terry Schiavo.  There is nothing that will change that.  To medivac him, with all those machines, across the ocean so the doctor can poke and pride, etc.  it's wrong.[/quote]

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