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Reply to "Is neuropsych needed in our case"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]For people who are astounded by 3 ADOS rounds by age 10[b] are missing the point that the OP on top of his/her kid's delays.[/b] When they're administered to a very young kid, it's pretty basic and involve things like blowing up a balloon. It's not a big deal at all. The point of doing a neuropsych evaluation is ultimately to determine what educational supports and/or related therapies would help. As a parent, I two would err on the side of doing a full evaluation and not just the ADOS. A neuropsych can evaluate for autism, but it can also screen for possible additional diagnoses such as... -- anxiety and/or ADHD which can't be diagnosed by the ADOS alone. If this is the case, you may want to consider medications. --dyslexia or dysgraphia (which would impact his executive functioning) Or your kid could end up with a diagnosis of Social Communication Pragmatics Disorder--and while not autism would probably require the same in terms of educational supports. OP, when you went to KKI did you meet with a developmental pediatrician? Did they flag any motor coordination issues?[/quote] And what is she getting out of all of it? She needs a expert in language disorders. [/quote] I don't understand your childish response, PP. Many parents seek out help when our kids have delays and regularly assess our children's needs every few years. We need to be able to inform the IEP team as to what our kids need. The OP diligently sought out help. And the alternative would be? Do nothing? The OP doesn't need to go to Vanderbilt for an "expert" in language disorders. If it's not a language disorder or autism, it could be quite a few other things. That's why she needs a neuropsychological evaluation.[/quote] Who mentioned Vanderbilt? And it's not "childish" -- it's practical. [b]She's been to evaluators, and they are sending her in circles. Instead of just signing up for another evaluation, she needs to find an expert that can target her child's issues.[/b] It means doing a lot of homework before you walk through the doctor's door. [/quote] I'm a PP but not the PP. Those issues would be? Multiple ADOSes does not = multiple neuropsychs. Often on this board I think people jump too quickly to recommend a neuropsych evaluation. It is not always necessary. In this case, it is. Maybe after that a language expert would be important, but I think a neuropsych is a better place to start because it sounds like there are other things in addition to language. And Vanderbilt came up, I assume, because PP assumed that "Camarata" would be the next recommendation.[/quote] I am the PP, and I did take all the ADOS testing to mean she had also already had at least one neuropsych done. [/quote] Nope. A toddler can have the ADOS testing. Please name a local "language disorder expert." The only name that consistently comes up on this forum is Camarata.[/quote] This isn't about a toddler nor is this really about a language disorder. The Camarata's are the leading experts. There are a few good private providers but that is subjective. Ours is great and really understands our child but is no longer doing this type of therapy. If anything, I'd go to Maryland or a clinic and get a new language evaluation but at this point, there probably isn't much speech therapy can do and the behaviors are mainly at home, which means there are triggers at home (or no triggers and it is just a safe place for child to figure it all out) and getting a good (which is easier said than done) therapist to help everyone figure that out and make changes would be more important. Child also needs to be evaluated to see if anxiety medication would be helpful. He probably should also be evaluated for depression given depression looks very different in kids and acting out is one of the signs.[/quote] No kidding it's not about a toddler. People need to understand that ADOS can be administered multiple times at multiple ages. Because it's called a SPECTRUM. For some children the signs are very apparent at a very young age. For others there may be some indications of autism and that's why the results may be inconclusive. It's not chasing your tail. This OP has logically followed what his/her kid's delays were. This kid got ST and an IEP. The OP's doing a great parenting job and is at a crossroad. It doesn't matter if the Camaratas are "the" experts or not. People recommend seeing a language disorder expert and their names are the only one that comes up. So if no one actually has a different suggestion, just say what you mean. The main issues are obviously with behavior, so if a ST can't help with this, stop suggesting this. Lastly, a neuropsychological evaluation CAN assess for anxiety. But it can also give a differential diagnosis. You don't want to medicate a child for something they don't have. Also, many of us do testing for our kids every few years. It's not necessarily a one and done affair. It's expensive but it helps navigating/planning for the future--correcting the course.[/quote]
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