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Kids With Special Needs and Disabilities
Reply to "Isolated and overwhelmed"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous]^^op again... meant below average. And going back to that, isnt it so hard to hear your kid described in percentiles and numbers like that? One of the scores, DS was in the .5th percentile. I didnt even know how to respond bc Ive never heard of such a thing and Im like my kid has language delays, major motor planning issues, how can these tests even measure what he knows when he cant motor plan and use language correctly enough to process the questions/tasks? And then I get wrapped up in the why- well why cant he motor plan or use language etc?? Did I not read enough or expose him enough to sensory rich environments, was it that time he fell and had a minor concussion? Was it bc he was breach? Did I not drink enough water when pregnant and maybe that caused him to be breach which caused these problems? My mind races with all these questions and thoughts. Its all so confusing and hurts to now have to think of my DS who was my precious bundle of joy as in the .5th percentile in this or that. Ya know? Trying not to of course but coming off IEP meetings, its hard not to. Sorry for long vents!!![/quote] I'm the "kabuki dance" poster and my child also has motor issues and severe language issues. Try not to concentrate on the percentiles because as you wisely note, children like ours can't effectively be tested using conventional means. You recognize that he has motor and language issues so the concern is not so much the percentile he falls into but getting him the proper therapies and technologies to assist him when he is very young. Can you post a bit more about the plan they are suggesting? His age? Placement? Are they recommending AAC for him? Is he doing private therapy? Are you in Maryland? I would be happy to share our roadmap and some good private resources that you might consider -- my child is 11 and we've been through A LOT of IEP meetings, testing, therapies, camps, you name it! It gets easier, it gets better, and there is always hope, OP.[/quote] PP thank you soooo much. I would love to hear your roadmap and resources. Can I email you since there is so much detail?[/quote]
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