Reply to Husband has Sickle Cell gene and didn't tell me

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]It's a widespread myth that sickle cell trait is always asymptomatic. Sickle cell trait is an intermediate phenotype, not a true asymptomatic carrier state. A proportion of individuals with SCT WILL have pain crises and other symptoms. Think of the trait as a less severe version of the disease. OP, I can't decide for you if you're in the right to be angry. I can only provide you with scientific facts.[/quote]
This needed to be said. Not enough people understand that death can occur from SCT. I don't even think the scientific and medical community have ever been able to gather accurate statistics on how many people have actually died as a result of complications from SCT. It is underresearched and can be mistaken for other things. [b]A girl that I went to college with 10 years ago died [u]in her sleep[/u] in her dorm room from SCT red blood cell sickling. They originally thought she had died from inhaling gum (and that is what all of the first news reports said) but later determined that it was as a result of SCT once they performed the autopsy. [/b]RIP Shanice. 🙏🏿

https://www.observer-reporter.com/news/2015/mar/16/coroner-cal-u-basketball-player-died-of-sickle-cell-complications/[/quote] I hate hearing of stories like this as a mom of a child with the trait. It’s terrifying because there is an added potential for danger that you have zero control over. My child got it from my husband, and the rest of our children do not have it. I make sure that she stays extra hydrated and does not go overboard when she’s running around playing (which often means resting more than her siblings have to). I dread the day when she’s old enough to want to play a sport. As a parent, you want them to be mindful of their limitations without creating resentment.[/quote]

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