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Kids With Special Needs and Disabilities
Reply to "Kicked out of every activity and summer camp we’ve ever tried"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Op here. Yes we have an IEP. Yes I have looked for one on one support. Most programs will not allow us to send in our own therapist/respite worker/aide/nanny/etc. I have asked and they all say no. Most of the activities we have tried actually have had one on one support (for all kids, not just mine) and it is something I look for when choosing activities. But in the recent few examples, the support is provided by volunteers that seem timid and not terribly skilled. Like they are expecting to be working with kids who have physical disabilities more than the challenges my DS has. We have done swim, he got kicked out of that too. But we do have a pool at home and DS is an excellent swimmer (we taught him ourselves). We also have an in ground trampoline. He gets a lot of physical activity. I think part of my exasperation is wanting him to be in something that DOESNT require my participation because I am exhausted. We are going into debt to keep the nanny. Like literally using credit cards because we can’t get DS into a camp. [/quote] Where are you that so many activities have 1:1 support for all kids? Are these special needs camps? Never heard of NT activities offering this much support. Some of your story doesn't add up. You have a pool at your home but you can't afford a nanny? You can afford tons of activities and camps that your child gets kicked out of but you can't afford the nany?[/quote] Op here. Yes, many if not most of the activities I described are targeted for kids with SN. Where we live, they use the words “adaptive” to signal this. I have put a lot of energy into finding these camps in our city. Not sure what to tell you but we live in a much lower cost of living city in a different part of the country, so housing is cheaper here and we bought our house a long time ago. And yes, Nannies are extremely expensive, particularly quality ones that are equipped to handle SN.[/quote] Huh. Sometimes the “SN” programs are actually the least tolerant. OP I think it’s fine for you to take a break from activities/camps for a year. [/quote]
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