Reply to Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?

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Reply to "Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Pretty much everyone has electronic records these days.

None of my kid's doctors treat him differently because he has ASD.

perhaps you should switch doctors. [/quote]

We have an HMO style insurance so its not as simple as switching doctors.  We no longer need any of the SN services so its a non-issue but the point is the diagnosis is in the electronic medical system and cannot be easily removed.  We'd have to change insurances, which we cannot do without a huge financial impact.  They do a superficial look at the medical records before our appointments (including ER visits) and see it.

Your electronic records are probably by each doctor, not an entire system, where every doctor, every specialist and even the ER can see everything (which is great in many ways and a problem in other ways).  [/quote]
Lot's of people have HMOs, and now states have databases that let 
every doctor in the state see your medical records, so your situation is not unique.  But if you talk to doctors the way you sound here, it's  no wonder both they and you are confused.[/quote]

What's confusing?  We got a ASD diagnosis with a quick appointment when child was a toddler.  Now it cannot be removed.  So, yes, its confusing and causes issues.  I think its interesting how ASD parents want to dismiss what others are going through but then get upset if they are dismissed.  That's like me saying, per my DCUM ASD diagnosis, given how my child is doing, your child should be doing the same, so why are you arguing with schools about IEP/504's as your child's diagnosis is exactly the same as my child's so there is absolutely no reason why you need accommodations (when reality is your child very much needs them).  ASD is a very broad term, which is what people are having an issue with as it doesn't do any of our kids much justice.  If someone sees my kid who is doing great in all aspects, then should someone hear high functioning and assume my HF kid is the same as yours when they are very different kids and have very different needs.  Just like getting rid of Aspergers was a poor choice as it had a specific set of criteria that explained those children well.  Same as getting rid of MERLD, which explains kids with receptive and expressive concerns well as its very hard to explain to someone about receptive langue as must don't get it. [/quote]
It's confusing because I didn't say anything like that,  you keep bringing in side issues and you keep contradicting yourself.  Just one example: you say ASD is a very broad term and people have a problem with that.  But you also say doctors think your kid is moderately impacted just by seeing "ASD" on the chart, which means they don't realize it's a broad term.  That story doesn't make any sense and I don't think you understand what the doctors are actually telling you.  Just like you think I said things I didn't say and also bring in a  bunch of other issues every time you post.[/quote]

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