Reply to Wyoming mom of 5 who refused cancer treatment to have 6th child has passed away

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]The chemo doesn't work, that's probably why.  Not much has changed in treating GBM in the last 15 yrs.  a lot of trials that don't do more than the standard crappy treatments.  You don't know how operable and location of the tumor(s).  If you've never seen what GBM does to someone, you have no idea what happens to the patient.  Your brain controls EVERYTHING so anything foreign up there causes issues.  Gbm cells double every 2 weeks and there's millions of cells that create a tumor.  It truly is a death sentence.  [/quote]

Not entirely true. The chemo drugs have changed in the last 10 years. They buy a bit more time (not tons more though) [/quote]

Really? It's still temador and now avistan, with unwelcome side effects.  Temador was experimental 15 yrs ago and now standard as is radiation.  I lost two family members to GBM, 12 yrs apart.  Believe me, not much has changed.  [/quote]

I'm so sorry, PP. Were they biologically related to each other? [/quote]

Yes, this is my immediate family.  One parent and one sibling.  It pisses me off people talking about it like brain cancer is a walk in the park for the patient.  Both lost the ability to walk and talk.  Not a great quality of life.  Like I said, your brain controls everything.  The treatments are harsh (fry your brain with radiation and be nauseous from chemo).  Multiple surgeries when the treatments stop working.  It's not a pretty process.  Most cancer patients die from when their cancer metatizes to the brain.  It's virtually impossible to stop GBM.  I have no opinion on this lady's plight.  I want people to realize GBM is no walk in the park.  [/quote]

I'm so sorry, PP. We've been through the hell of GBS once, and it was just as you described - the idea of going through it again is just devastating. [/quote]

Thanks.  So sorry for your loss as well.  People don't get it unless they experienced it. Truly hell on earth for the patient and loved ones.  [/quote]

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