Reply to Leucovorin now approved by FDA--will providers prescribe to ASD kids?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Leucovorin now approved by FDA--will providers prescribe to ASD kids?"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Can you really buy this over the counter?  Can someone post a link if so?  I know that folinic acid is not the same as methlyfolate.

As a mom of an ASD boy with limited verbal communication,  I am interested in trying this.  I am obviously concerned about side effects but I think people are not taking into consideration how debilitating it is to struggle with communication.  I watch my child struggle all day every day. So from my perspective this drug or vitamin is worth a try.  I think everyone understands it is not a cure... but it seems it has helped some kids.  
[/quote]

Its a prescription drug. The question is, is a study with 40 kids a good enough reason to give your kid a prescription drug (already approved, this is an off-label use), that may or may not work, or would you prefer to wait a couple of years for actual studies that would figure out a) how do we figure out [i]which [/i]kids it works for, b) what are the correct doses and dispensing instructions and c) what other factors (like speech therapy) should be provided in conjunction for the drug treatment to be most effective?

Wait, that's a false choice because DOGE and RFK Jr. fired everyone at the NIH and cancelled all the university research funding for autism. [/quote]

What do you think the answer would be if you asked parents if they wanted to try a drug now with a long safety history, that might not help, but that might lead to small-to-moderate improvements to verbal communication? Or if they'd rather wait for a couple years as their kid falls further and further behind?

They'd jump toward it.

I really don't think a lot of the posters here understand what kids and parents are already going through with medications. Even established drugs used for on-label indications have low efficacy and significant negative effects.

[/quote]

DP. How does this excuse Trump and RFK Jr engaging in this pump & dump scheme? When they are literally the two people in the entire country who could make the research happen so parents would have more to go on than “maybe this will help”.

And you are wholly ignorant if you think there is somehow no possibility of negative side effects. because of course the trials have *not been done* to find out. [/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics