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[quote=Anonymous][quote=Anonymous][quote]'m the OP and we've now had to add 24/7 care on top of memory care. Memory care is over $14k a month and 24/7 care is just over $6k a week. Averaging about $10k a week at this point. Hospice is involved and I think we're down to days to weeks but if this sustains longer I'm not sure what we're going to do. We have moved to comfort care but nature still takes its time taking its course. My mom has money but seriously my run out if this is long term. And she would be absolutely devastated and mortified if she had any idea what is happening. But I truly don't see any other options at this point[/quote]

So sorry you are going through this, OP. My mom is stage 6 so its coming, but for now she is physically ok, just mentally gone.

I hope this is not sounding disrespectful... I am curious about why you added 24/7 care if she is in MC and hospice? Is it fall prevention or? (which might be terrible but it sounds like she is actively dying anyway)...And I ask this full well knowing that when faced with a similar situation I wouldn't necessarily know what to do. [/quote]

Fall prevention mostly, a dedicated babysitter.  She's always (her entire life) been antsy and has never been able to sit still and just relax.  Always on the move.  Now that she's weak and frail she still tries to be on the move.  Night aides are an absolute necessity, she gets up multiple times a night to use the restroom and would fall every time if left to her own devices.  Daytime I've toyed with backing her down and only having care 7pm to 11am, allowing the staff caregivers to watch her 11am to 7pm.  Problem with that is I think she'd last about five minutes before she tried to get up out of her wheelchair and start trying to walk- and fall.  I'm not sure I could handle the guilt of her actually injuring herself when she has the means to pay for care.  She really is the worst of every potential, possible dementia symptom.  She's added in restlessness and agitation the past two weeks- up and moving all day and night for two days at a time.  Exhausting even for the hired caregivers I'm sure.  Drugs don't make a difference.

I'm struggling with making these decisions- she has money and, as it's been pointed out and point taken, I guess this is what it's for.  Although if this goes on for too long she will actually run out of money, which is just a sad and shocking thought.  She would be mortified and devastated if she had the capacity.  I'm not really sure if there are any other options.  [/quote]

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