Reply to Kicked out of every activity and summer camp we’ve ever tried

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Reply to "Kicked out of every activity and summer camp we’ve ever tried"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][twitter][quote=Anonymous][quote=Anonymous][quote=Anonymous]Op here. Yes we have an IEP.

Yes I have looked for one on one support. Most programs will not allow us to send in our own therapist/respite worker/aide/nanny/etc. I have asked and they all say no.

Most of the activities we have tried actually have had one on one support (for all kids, not just mine) and it is something I look for when choosing activities. But in the recent few examples, the support is provided by volunteers that seem timid and not terribly skilled. Like they are expecting to be working with kids who have physical disabilities more than the challenges my DS has.

We have done swim, he got kicked out of that too. But we do have a pool at home and DS is an excellent swimmer (we taught him ourselves). We also have an in ground trampoline. He gets a lot of physical activity.

I think part of my exasperation is wanting him to be in something that DOESNT require my participation because I am exhausted. We are going into debt to keep the nanny. Like literally using credit cards because we can’t get DS into a camp. [/quote]

1. Is there an Arc or JCC nearby? Those may be good solutions. They offer shadows for camp, and many very disabled kids go. What about your school? You son sounds like he would qualify for summer school.
2. Do you have a self contained placement for next year? I want you to avoid the misery of what not having one will be like for k. [/quote]

Op here. We do have a JCC close by but their disability programming is geared towards middle school and up. They don’t offer it for 5 year olds. It’s too late to do camp there this summer even if they agreed to take my DS.

I don’t have a self contained placement for next year. I tried to get one, even hired an advocate. He was performing well in a normal preschool classroom so they wouldn’t approve it. I couldn’t get an aide either. But he does get speech, OT, and time with a special Ed teacher at school. It took moving heaven and earth to get those supports though.[/quote]

Wow, okay how did he do preschool? What’s different there?[/quote]

Op here. Preschool was small class size, only a few hours a day, and had 2 teachers in a class of 10 students.

The kindergarten has 18 kids in one class with one teacher…

[/quote]

So he's doing well in a preschool with a 5:1 ratio? What's different between preschool and these activities you're trying? According to your description ("performing well in a normal preschool"), your child is capable of success in a mainstream setting. That success should generalize to a class or activity if you can figure out what's different. [/quote]

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