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Kids With Special Needs and Disabilities
Reply to "best place for second opinion on ASD diagnosis?"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]^So I see OP's DD did have ADOS and it wasn't just the inexperienced developmental pediatrician who diagnosed ASD as stated on the first post. Go see the Camarata's if you wish... it's a journey.[/quote] ADOS with an inexperienced tester can lead to a wrong diagnosis. [/quote] Developmental pediatrician. Camarata’s are good for a nonverbal IQ year and that’s pretty much it. There’s no follow up or any kind of support from them. Take your child to a good dev ped regularly. They will have recommendations for you. [/quote] Not our experience at all with the Camaratas. They conferenced in our IEPs, gave us a strategic plan of action, etc. OP you can also schedule a phone conference with Mary. I know several people who have done this and to a person they were all happy they did.[/quote] A lot of DCUM posters have complained that they don't give the extended support and individual attention the way they used to. Personally, I think that follow-up is very important. No matter how skilled they are, I still want someone who continue to provide support as needed.[/quote] I personally called and emailed Mary and Stephen for the better part of six months and I received no reply. After six months Mary called and said that they are a ‘busy clinic and that they don’t offer any ongoing support’. I regret wasting a year plus of my son’s developmental life listening to what they told me to do with him. It did not help him and we needed more support and we didn’t get it. If you think that you need anything except a one time report one in your child’s life I would not spend the money and time to go there. [/quote] Dr. Camarata does not respond which is frustrating. You have to go through the clinic/his secretary to book an appointment. You don't go directly to him. We needed a one time report but only got raw numbers. He does not write his own reports and works with another SLP (clinic chooses) and she was terrible. Mary does return calls eventually but you have to call many times. She needs a secretary or help but she doesn't charge a huge amount and probably cannot afford to pay for help in less she increased her rates. They are good for one time-in person help. Years ago I think they were very active but they have branched out with books and other things and are not really child/patient based anymore.[/quote]
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