Reply to best place for second opinion on ASD diagnosis?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]^So I see OP's DD did have ADOS and it wasn't just the inexperienced developmental pediatrician who diagnosed ASD as stated on the first post.

Go see the Camarata's if you wish... it's a journey.[/quote]

ADOS with an inexperienced tester can lead to a wrong diagnosis.  [/quote]

Developmental pediatrician. Camarata’s are good for a nonverbal IQ year and that’s pretty much it. 
There’s no follow up or any kind of support from them. Take your child to a good  dev ped regularly.
They will have recommendations for you.  [/quote]

Not our experience at all with the Camaratas. They conferenced in our IEPs, gave us a strategic plan of action, etc.

OP you can also schedule a phone conference with Mary. I know several people who have done this and to a person they were all happy they did.[/quote]
A lot of DCUM posters have complained that they don't give the extended support and individual attention the way they used to.  Personally, I think that follow-up is very important.  No matter how skilled they are, I still want someone who continue to provide support as needed.[/quote]

I personally called and emailed Mary and Stephen for the better part of six months and I received no reply. After six months Mary called and said that they are a ‘busy clinic and that they don’t offer any ongoing support’. I regret wasting a year plus of my son’s developmental life listening to what they told me to do with him. It did not help him and we needed more support and we didn’t get it. If you think that you need anything except a one time report one in your child’s life I would not spend the money and time to go there. [/quote]

We went annually for a time. Once we did not get a follow up report. But we learned to get all our information while we were there,  including test result numbers. We even taped the sessions. Every visit was 5 hours of one on one attention.

Best thing we did for our child. We had a meeting last spring with one of my son's high school teachers, and she mentioned a couple of learning styles and personality quirks, and they were ones the Camaratas noticed within 20 minutes of meeting him.

We used the information they gave us to fight for our kid. We had seen a lot of other people, and no one gave information to help us. They just wanted to sell us things and services.

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